special needs parenting Archive

A Holy Shift

A Holy Shift

I descended the stairs, immediately irritated by what was awaiting me with each scream originating from my 15-year-old son. Great, I muttered as the uninvited stench rose to greet my nose. Luke, my...

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Holy Work

Holy Work

“This is holy work,” I begrudgingly reminded myself a day after returning home from a much needed vacation; a week of relaxation, sun, and reconnecting with my husband, and here I was now, again,...

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See Me Too – A Caregiver’s Plea

See Me Too – A Caregiver’s Plea

Dear mama with normal children, Normal? Typical? What’s politically correct you might wonder? As do I and – What is normal anyway? Honestly, I’m not sure because I’m tired. And I don’t spend my free...

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To The Medical Mama – I See You.

To The Medical Mama – I See You.

How many times have Ryan and I watched from a distance – mostly online – as a special needs family spent weeks or even months in the hospital with their child, and we said to each other – gosh,...

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A Glimpse – I Choose Hard

A Glimpse – I Choose Hard

“You and Ryan seem so calm” A phrase I often heard when Luke was in PICU for almost 4 weeks this past December and into January. We probably appeared calm because we’ve experienced the worst case...

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Caregiver Spotlight – Jess Ronne

Caregiver Spotlight – Jess Ronne

 I am so honored and amazed at how many of you offered to share your stories about special needs with the world. Thank you from the bottom of my heart.  The only way we see change and more...

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